WHAT IS Pulmonary Hypertension (PH)?

Pulmonary Hypertension (PH) is a rare, terminal, severe heart-lung disease. It is incurable, and does not go into remission. It affects people of all ages and ethnicities. It can be inherited, or can develop as a complication of an underlying autoimmune disorder such as Lupus, Scleroderma, Rheumatoid Arthritis, AIDS, and many others. It can also develop during pregnancy. Many patients have it as a primary disease, without any known cause (Idiopathic). There are currently a number of medications to treat the symptoms of this horrible disease, and a few that attempt to slow its progression, but there is NO CURE

In many cases medications must be administered directly into the bloodstream 24/7 via a central catheter or subcutaneous drip, and all of them come with a wide range of side effects ranging from the unpleasant to the virtually unbearable. PH symptoms may include exhaustion, shortness of breath, fainting, swelling, heart palpitations, chest pain, nausea and dizziness. As this disease constricts the blood vessels between the heart and lungs, and the vessels of the lungs themselves, one has the sensation of being slowly strangled to death, which is precisely what is actually happening. As the blood vessels constrict, the right side of the heart must work harder and harder to push the blood through the lungs and the body, resulting in eventual right heart failure and death. 

There are several organizations supporting Pulmonary Hypertension patients and research for a cure, including:

Team PHenomenal Hope
https://www.teamphenomenalhope.org/
phaware Global Association
https://www.phaware.global/
Pulmonary Hypertension Association (United States)
https://phassociation.org/
Pulmonary Hypertension Association of Canada
http://www.phacanada.ca/
Pulmonary Hypertension Association Australia
http://www.phaaustralia.com/
European Pulmonary Hypertension Association
http://www.phaeurope.org/
Pulmonary Hypertension Association UK
http://www.phauk.org/
Pulmonary Hypertension Association Israel
http://www.phisrael.org.il/content_eng.asp?type=98
World PH Day
https://worldphday.org/


For more information about Pulmonary Hypertension, visit the PHA’s pages at:
https://phassociation.org/patients/aboutph